No seizures since last Wednesday! Oliver's had a pretty easy last several days but we've been watching his heart rate closely. Soon after the seizures stopped his heart rate frequently hovered in the 80s (rathoer than his normal average of 100 beats per minute), and occasionally would spontaneously drop as low as the 50's for a few beats. We (I mean his team of doctors and us) stopped one of his medications that has the effect of lowering his heart rate (a beta-blocker prescribed for his cardiac arrhythmia that he may have outgrown by now anyway). This has helped, but then his heart rate started to creep a bit too high, so we will probably start back on the medication but at a lower dose. Thankfully, his last few days have been easy!
Elsa wanted to hold him today so I put her up in his crib for a while. She LOVED rubbing his head and playing with his hair. I think he loved it too - it put him right to sleep!
And Oliver got a new "high chair" of sorts today! I found an awesome bar stool on Craiglist - awesome because it was the right height, the right price, sturdy and heavy for little girls to climb, and the style even fits our living room! Thank you God, thank you Craigslist! Now we have a comfy spot to sit next to him and for the girls to reach him. Elsa's showing him his Valentine's Day card from my mother:
i cannot think of anything sweeter i have seen as of late. all your sweet babies full of love.
ReplyDeletecontinue to pray and believe in miracles!
love to you all!