We've been home for over a month and we are so thankful to be back in our familiar surroundings.
These catch-up posts will not be the most eloquent but hopefully they will give a good snapshot of our lives since we left Portland. There's a long post about Oliver, and lots of little posts with photos since we left Portland.
We ended the year by putting off the work of settling back in order to just enjoy Christmas, and we started the year with a 911 call and a lost-but-started-again heartbeat. We're learning to coordinate nursing schedules, new medications, palliative care nurses and pediatric specialists, medical supplies, respiratory support services, physical therapy/Early Intervention, state and federal support programs and insurance policies, not to mention giving priority to maintaing a marriage, toilet training (Nora) and learning to read (Elsa). Many friends, old and new, have come to our home to pray for Oliver and our family.
It has taken me a while to catch up here mostly because our days are just so full and we are so tired. I know I have also put off posting some nights because so often, at the end of long and exhausting day, it is especially difficult to want to put into honest words the events of the days and the deep emotions that accompany them.
So, yes, I am weary and grieving, but I also continue to be surprised (even though shouldn't I know better by now than to find it surprising?) by God's sustaining gifts and perfect comfort.
Like this: Who, even after a long day of alarms and phone calls and a disaster of a dinner, wouldn't find themselves smiling and even belly laughing at this moment captured by my friend who was helping us that night:
These catch-up posts will not be the most eloquent but hopefully they will give a good snapshot of our lives since we left Portland. There's a long post about Oliver, and lots of little posts with photos since we left Portland.
We ended the year by putting off the work of settling back in order to just enjoy Christmas, and we started the year with a 911 call and a lost-but-started-again heartbeat. We're learning to coordinate nursing schedules, new medications, palliative care nurses and pediatric specialists, medical supplies, respiratory support services, physical therapy/Early Intervention, state and federal support programs and insurance policies, not to mention giving priority to maintaing a marriage, toilet training (Nora) and learning to read (Elsa). Many friends, old and new, have come to our home to pray for Oliver and our family.
It has taken me a while to catch up here mostly because our days are just so full and we are so tired. I know I have also put off posting some nights because so often, at the end of long and exhausting day, it is especially difficult to want to put into honest words the events of the days and the deep emotions that accompany them.
So, yes, I am weary and grieving, but I also continue to be surprised (even though shouldn't I know better by now than to find it surprising?) by God's sustaining gifts and perfect comfort.
Like this: Who, even after a long day of alarms and phone calls and a disaster of a dinner, wouldn't find themselves smiling and even belly laughing at this moment captured by my friend who was helping us that night:
:)
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