Wednesday, April 24, 2013

Three weeks out

I think I'm past the initial shock wave of Oliver's death.  I had thought that since we saw it coming the shock would be buffered, but that is not the case, as several grief-related resources have confirmed to me.  I then had to acknowledge my drive to face it head on and deal with it and plow through it, strong and quick.  But several close friends have assured me that it is not possible to rush grief, so I am resigning myself and settling in to ride out the storm - I will still meet it head on - you steer the schooner into the gale (I remember that, dad), but you can't make the hurricane move faster - they tend to slow down when they hit the shore. 

The support and love that our community, both near and far, has surrounded us with is wonderful and we are so thankful.  All the sympathy flowers have faded now, but I'm happily incorporating the potted plants we were given into our home. 

It feels absolutely terrible.  It feels like fear and confusion and a painfully empty stomach.  Without warning it expands like a void swelling from the back of my neck into my cerebrum and I either permit my voice painful expression through my tears "Oh, my baby!" or to try to force it, if I can, to wait until a more appropriate time. 

I read through Nicholas Wolterstorff's Lament for a Son tonight.  One of my college roommates mentioned it to us, and I'm so thankful (Thank you, Bethany).  It is not your typical biblical exposition on grief.  It is raw and beautifully written and spoke directly to my deep ache, giving full space for the pain and wrong-ness of death.   Wolterstorff contemplates the place of suffering not only in a Christian's life but also as part of the nature of our God.  It is a short read, about 100 pages, (I am a fast reader and finished it in an hour), and I would recommend it to anyone who wants a better understanding of grieving for a child (or anyone), for themselves or to better understand someone they love who is grieving.  Somehow it helps to have someone else give voice to my confused state of being. 

The last week and a half has been very difficult.  I am unfocused and disoriented, unmotivated, easily annoyed, short tempered, and living on tea and smoothies.  It is good tea and they are green smoothies, but still.   Having friends around and stopping to help or just have tea (I like tea) has been good because it gives me some accountability and keeps me motivated to keep the house functional.

I have a history of being prone to depression, which is one of the motivating factors for me to be open and descriptive of how I am doing. I do not want to force my grieving into a box, but I also want to be careful to not slip too far out of the normative process and into unreasonable depression.

We've been outside a lot now that spring is warming the air.  I've been re-working our flower beds and establishing new vegetable beds in the greenhouse - projects that have been on hold for the last year.  It feels strange intentionally letting myself mostly do what I want instead of forcing structure and chores in our day, but I think it has been OK for the last few weeks and maybe a short time more.  Besides the grieving, I'm dealing with the fact that 75% of my daily job description has been wiped away.  I have new daily routine mapped out, and we will slowly be adjusting our day into it. 

There is suddenly new depth to 1 Thessalonians 4:13, " ...do not grieve like those who have no hope."  This hope and grief are intimately twined together.  My hope does not prevent the pain or even soften the blow, but it is much more than a silver lining to the story.  Knowing that he is "in a better place" and "has been fully healed" does nothing to ease the ache of loss.  It does inform my grieving, and gives depth and meat to the bones of my suffering - this world is not right - so there is a deep, appropriate mourning that cannot be seperated from the hope.  It does gives my mourning an expectant quality.  I wait in expectation for the New heavens and the New earth and to embrace Oliver in his redeemed body; until then I will be feeling the lament of his absence and pleading God for patience as I wait.

Little girls with baby bunnies

This past weekend some friends of ours held their wedding at a house that happened to be home to five, fifteen day-old bunnies.  The owner of the home was delighted to have the bunnies "tamed," and the four little girls at the wedding (two of which were ours, of course) were delighted to do the taming.  We are so thankful for joyful moments like these to break through our current sadness.  So here are way too many pictures of little girls with baby bunnies. 






 
 
 
 

 


 
Oh, and one picture of a daddy and a baby bunny:


The ladybug and the unicorn skipped out to play...

Some dear friends and their daughters sent us a colorful box full of surprises, including a perfect fitting unicorn and ladybug.  Elsa and Nora were beyond delighted.  (Seth and Sally - Elsa has drawn out a delightful thank-you note that I will get sent out to you some day soon...) 

After being cooped up in the package for so long during shipping, the creatures were desperate to get out and play.  Besides, it was a perfect spring morning, after all, and it was good for all of us to get out for a walk.





 
Can you help but smile when a ladybug lands on your shoulder?



 
 
I like this school playground in particuar because you can see the mountians surrounding our valley in almost every direction.  If only the wings were real.



Real food through a feeding tube

I started this post over a month ago, but still wanted to post it in case it might be helpful to another family who wants provide real food for someone with a feeding tube.  I couldn't find too many resources on it myself, so with our nurses' help we came up with a system that worked for us. 

I have become a firm believer in the value of real, whole foods.  I am so thankful that I was able to provide milk for Oliver, and that we never had to give him formula.  (Yes, I pumped milk for over a year.  And by that I mean I pumped essentially 100% of my milk for Oliver - at most he was able to nurse two ounces a day, and that happened only rarely in the few months just after he was born.  And while I have the utmost respect for mothers who choose to pump when they return to work, this was very different.  Pumping every 3 hours for a sick baby who lacks stamina to nurse on his own even though he has the desire to is very different.)

When my milk supply started to decline I was determined to start him on "solids" just as I would a "normal" baby, especially since as far as we could tell his digestive system was working perfectly fine.  I approached his baby food the same way I did for the girls, except that we had the challenge of liquifying it enough to go through the feeding pump and g-tube.  I am so very thankful for my BlendTec blender that we got last year - it did this job wonderfully!  I LOVE my blender.

I chose to use simple (but extremely nutritional), traditional chicken stock that I made from "happy" free-range, organic chickens as the added liquid.  Oliver got to "eat" avocados, brown rice, beet greens, quinoa, sweet potato, butternut squash, and bananas.

Here's the chicken stock (with liver for iron and some meat bits too) and avocados.  Yum.  Blend until completely liquid, adding more stock until you get the needed consistency (FYI I put too many avocados in to start with in this photo, and had to take some out and add a lot more stock to get the right fluid consistency for the feeding tube).   Getting the "right" consistency was a matter of trial and error - blend the food, try running it through the pump, if it gets stuck blend it again and maybe add more stock, etc.


And here are the beet greens, all blended up, just because I think they are pretty:


This is chicken stock and quinoa (a traditional whole grain that is a more complete protein than most grains) in the best baby food/ice cube trays I've found.  They are the Green Sprouts Silicone Freezer Tray - they are flexible and hold exactly an ounce for each food cube, which was great as we were keeping track of what Oliver was eating.  (You can get them on Amazon.)



Yes, your kitchen will get messy in the process, but you won't have to do this for another month or so, and look at all the baby food you have now!

Freeze it all up, bag it, label it (I listed the date and ALL the ingredients so we could easily track all of his meals in case we needed to).


We did have a few times when the pump and tubes would get blocked, but it happened only rarely after the first few days of experimenting with how long each type of food needed to be processed.  We also continued to dilute the cubes of baby food with my milk since we were just supplementing his diet at the time.  My plan was to eventually give him 100% real food after he was "weaned" off milk (or when I absolutely couldn't stand pumping anymore), or at least mostly real food with formula supplementation if needed for some reason. 


This system worked great for us - if anyone stumbles upon this post and is trying to offer a loved one real food through a feeding tube, please know that I am not an expert by any means, but I would love to help if you have any basic questions about how we got it to work. 

Snow day


(This post somehow got lost and not published on time - better late than never!)
(From December, 2012)
 
My mom, dad, and the girls and I spent a day up at Union Creek after christmas.  We had to drive an hour to find enough snow for sledding and angels, but we (especially Elsa!) thought it was worth it. 
 
 

 
 





A simple moment.

(This post somehow got lost and not published on time - better late than never!)
(From December, 2012)
 

Be this sunset one for keeping...

(This post somehow got lost and not published on time - better late than never!)
(From September, 2012)

We don't have a spectacular view from our home, but we love the bit that we do have.  I live for evenings like this: the girls playing around the trees, the baby and I on the swing with Joel, and the last barely-still-warm breeze of the year settling around our shoulders as I watch the sun sink and the light fade from gold to rust to violet.



Down,


and down,



gone again.